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Pain Marches On (A Quick Recap of 2.75 Years of Not Writing)

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 I can hardly believe that I'm four months shy of it being 3 years since the last time that I have written. It seems I could do a better job of writing when the kids were younger and we were on a bit of "schedule". Now that everyone is getting older, enjoying their own interests, and going into different directions, I am not sitting down with my computer (or my thoughts šŸ˜) as much. I am hopeful to change that a bit more. How to sum up the past 3 years? I think I left off with a sleep apnea diagnosis and I was awaiting the sleep machine. Well, that was a huge bust. I slept so much worse with the machine than the disrupted sleep (or lack thereof) without the machine so I took it back.  I began working at Spokes cafe in August of 2022, and after seeing a Paraprofessional job opportunity at Granger Elementary in October of 2022, I quit Spokes to go work at Granger and I loved that decision! I loved the students, my co-workers, and the environment so much. It felt so great to...
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Relevant and Noteworthy Articles

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Photo credit for  meme to "hellsbellsandmastcells.com" https://www.ahajournals.org/doi/full/10.1161/01.hyp.0000158259.68614.40 https://www.rccxandillness.com/?fbclid=IwAR3qtvANnpJc4QhmkczFWs69jXSu2iO7IwzPXhIu9k6SN5i02Jj-nxEag1s#.XbroF6RsnCs.facebook https://www.youtube.com/watch?v=YQpAYCzGAC8 https://en.wikipedia.org/wiki/Mast_cell_activation_syndrome https://www.aaaai.org/conditions-and-treatments/related-conditions/mcas https://www.nytimes.com/2019/02/18/smarter-living/five-things-i-wish-i-knew-chronic-illness-crohns-disease-ibd.html?fbclid=IwAR2IppHwSpZNnl0zDjAhTUsfxxwUQTP_NYf1FZQ4nSDK9fopYVS8dH2TSeU https://www.thelily.com/a-chronic-illness-upended-my-life-im-still-trying-to-find-a-new-normal/?fbclid=IwAR1-4tRShl3kj9Lt6v_-S28qe3Xtneerqog-ekbpscdko2ICfGOw_4LWh7M A wonderful broadcast of the Anchor of the nightly news talking about her diagnosis of POTS: https://wpde.com/news/local/the-article-i-wish-id-had-diagnosed-with-pots-and-still-ancho...
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The Worse of the Two or Lesser of the Two?

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Definitely coming to terms that "feeling like crap" is my new normal, but this week I was "feeling like death warmed over"...if that's such a thing? Or am I being too dramatic? šŸ˜… Recently, I had the opportunity to visit my Immunologist after over a year since my last visit (due to COVID I was forced into remote homeschooling last spring when I was due for my follow up. Now, Iā€™m teaching regular homeschooling, and have had absolutely no energy to do the trip).  The Dr. prescribed me a few new medicines; one of which is oral cromolyn sodium, that's specificlly used to treat Mastocytosis. For the past year I've been on a strict regimen of claritin, xyzal, Monocluest, and hydroxyzine paired with probiotics, digestive enzymes, and as much self control of eating tempting foods, as I can tolerate.  My chief complaint to my Doctor was a symptom I've had for quite some time: internal tremors/vibrations/static. The "dial has been turned up", for lac...
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